National Association of School Psychologists

HIV/AIDS
What Parents Should Know

by Tiffany A. Chenneville & Howard M. Knoff, Ph.D.
University of South Florida

Introduction

Acquired Immune Deficiency Syndrome (AIDS) is not only a health crisis, but a social crisis that has affected every sector of the United States. The number of persons with AIDS in the United States is staggering, and it continues to multiply. Furthermore, the growing number of individuals infected with the Human Immunodeficiency Virus (HIV), the virus that causes AIDS, is even more disturbing. Nobody is immune because AIDS does not discriminate by sexual orientation, gender, race, socioeconomic status or age.

The failure of AIDS to discriminate by age is evident by the growing number of children and adolescents infected by HIV/AIDS. There also are scores of children who are not infected, yet are affected by HIV/AIDS because one or both of their parents, or other family members, have been diagnosed as being HIV positive or having AIDS. In fact, an increasingly large number of children have been orphaned by parents who have died from AIDS. It is estimated that over 80,000 children will have been orphaned by the year 2000 due to parental deaths caused by AIDS. Non-infected children and adolescents also may be affected through their association with peers or significant others who are HIV positive, have AIDS, or who have lost loved ones due to AIDS.

HIV/AIDS in Children and Young Adults

As of June, 1996, over a half a million (548,102) diagnosed AIDS cases had been reported to the Centers for Disease Control. Approximately 1.3% (or 7,296) were children less than thirteen years old. This is a significant increase from the 3,898 pediatric AIDS cases reported just three years before in 1992. Relative to adolescents, the incidence of AIDS also is considered to be large and increasing. In fact, AIDS is considered to be one of the leading causes of death among teenagers, and it is estimated that two individuals under the age of 25 are infected with HIV every hour. AIDS is also the leading cause of death for people between the ages of 25 to 44 in the United States. This is significant because it is believed that many of the young adults currently infected with HIV/AIDS may have contracted the HIV virus during adolescence. Thus, adolescent incidence figures may underestimate those who contract HIV but do not exhibit its symptoms until early adulthood.

Relative to gender, HIV is being contracted more rapidly by women, including young girls and adolescents, than by men. Critically, the large and increasing number of females with AIDS also increases the probability of children being born with HIV due to pre-natal or peri-natal transmission. It is estimated that 25% of infants born to HIV-infected mothers will themselves become infected. These children represent one of the fastest growing groups testing positive for the HIV virus.

Definitions

  • HIV - Human Immunodeficiency Virus, the virus that causes AIDS.
  • AIDS - Acquired Immunodeficiency Syndrome, the condition that results from HIV infection. AIDS is distinguished from HIV by the presence of an opportunistic infection or a T-cell count of 200 or less.

What We Know About HIV/AIDS

Transmission:

HIV is transmitted through blood, semen, vaginal fluid, and in some cases, breast milk. This allows for many possible modes of transmission including the following:

  • Sexual contact (vaginal, anal, oral) with an HIV-infected person
  • Sharing needles or syringes with someone who is HIV positive
  • Mother to child transmission during pregnancy, during delivery, or in some cases, through breast feeding
  • Blood transfusion with contaminated blood products, although the risk of HIV transmission through blood transfusions is minimal given current blood screening practices employed by blood banks.

It is critical to note that HIV is not transmitted through casual contact.

Prevention:

  • Abstinence from sexual activity
  • Condom use during sexual activity (vaginal, anal, and oral)
  • Not sharing needles or syringes

It is critical to note that condoms are not 100% effective but greatly reduce the risk of HIV transmission.

Facts about AIDS

  • You cannot tell if someone has AIDS by looking at them.
  • Currently, there is no cure for AIDS.
  • Currently, there is no immunization to guard against the transmission of HIV.
  • AIDS affects people of all ages, races, and socioeconomic status, and individuals with different sexual orientations including heterosexuals, bisexuals, and homosexuals.
  • No cases of AIDS have been reported due to kissing, biting, or mosquito bites.
  • HIV is not transmitted through touching or hugging.
  • HIV cannot be contracted from donating blood.
  • There are no reported cases of HIV being transmitted from child to child or child to staff member in a school building due to fights or contact sports.

Impact of HIV/AIDS on Children and Adolescents

Many issues relative to academic and social development and functioning arise for children and adolescents with HIV or AIDS. In addition to the physical implications of HIV/AIDS, there are various neurological and psychosocial implications as discussed below.

Physical Implications

HIV infection suppresses the immune system making persons testing positive for HIV vulnerable to opportunistic infections and illnesses which include, but are not limited to, certain forms of cancer, pneumonia, and fungal infections. Therefore, the physical symptoms experienced by persons with HIV or AIDS will vary according to their physical condition and the impact of these illnesses. HIV-infected individuals who have not been diagnosed with an opportunistic infection may also experience generalized symptoms associated with immune suppression such as fatigue, diarrhea, weight loss, fever, and night sweats. To date, there is no cure for AIDS; however, pharmacological therapy (e.g., antiretroviral medications, protease inhibitors) is used to prolong the onset of symptoms.

Neurological Implications

Antiretroviral medications, as well as medications which help to prevent serious opportunistic infections, are thought to be partially responsible for extending the life of HIV-infected individuals.

However, the quality of life for such individuals can be negatively affected by subtle, progressive and insidious problems directly resulting from HIV infection, including neurological impairment. HIV infection and AIDS not only impact the immune system, but also the central nervous system. In fact, it is hypothesized that HIV may directly infect the brain. As such, neurological impairment may result from either a direct attack on the central nervous system or through opportunistic infections that the body cannot stop due to HIV or AIDS.

Many children infected with HIV experience some degree of difficulty resulting from developmental delays and/or cognitive disabilities. It is known that HIV infection can interfere with the normal brain development of children, resulting in neurological damage. This is especially true for children infected during and shortly after birth, whose central nervous systems are not yet fully developed at the time of infection. Among other types of brain damage, visual and auditory short-term memory loss, attention deficits, language disorders, spatial ability problems and language difficulties may be observed in children with AIDS. Furthermore, moderate to severe mental retardation is associated with certain neurological disorders caused by HIV.

While HIV-related neurological impairment in children is commonly associated with cognitive delays, neurological impairment in adolescents is more commonly associated with cognitive deterioration. Neurological damage commonly results in the death of children with AIDS.

Social Implications

Many of the symptoms reported by children with AIDS are similar to those experienced by children living with other chronic illnesses. Such symptoms include loss of abilities, physical impairments and the fear of impending death. Each of these may result in psychological reactions, including anxiety and depression. However, the social experiences of HIV-infected children differ from those of children with other chronic illnesses in several ways. First, many HIV-infected children, especially those who contract the virus perinatally, may have to cope with losses associated with AIDS-related illnesses and deaths within their families. Second, HIV-infected children are likely to experience additional risk factors: chronic poverty, housing problems, nutritional problems, poor access to medical and social support services, and exposure to violent or dangerous neighborhood environments. Third, and most important, is the stigma associated with HIV/AIDS. AIDS-related stigma is the result of both fear and discrimination. Attempts have been made to deny rights to individuals infected with HIV/AIDS, including the right to employment and the right to a free and appropriate education. Although federal and legal mandates attempt to protect the constitutional rights of people with AIDS, stigmatization and discrimination persist.

What Can I Do as a Parent?

  • Pregnant mothers who are not known to be HIV positive but have engaged in high-risk behaviors that increase the likelihood of HIV transmission should be tested for the virus so that precautions can be taken to reduce the risk of transmission to the unborn child, if needed.
  • Pregnant mothers who are known to be HIV positive should share this information with their physician so that precautions can be taken to reduce the risk of transmission to the unborn child. Antiretroviral medication taken by pregnant mothers has been shown to reduce the rate of mother-to-child transmission during pregnancy or delivery from 25% (without medication) to 8% (with medication).
  • It is a well-documented fact that children model their parents' behavior. Therefore, it is important that parents model appropriate behavior that emphasizes problem solving and informed decision-making. It also is critical that parents model behavior that discourages discrimination and prejudice against persons with HIV/AIDS. This type of modeling by parents not only impacts their own children, but also the communities in which they live.
  • Parents have a responsibility to educate themselves and their children about HIV/AIDS in an attempt to prevent the spread of this deadly disease. Parents must be knowledgeable about the modes of transmission and the modes of prevention if they are to educate their children about how to protect themselves. AIDS education policies relative to what can and cannot be taught vary among schools. Therefore, parents cannot rely solely on their school systems to provide accurate information to their children about how to prevent contracting HIV. Parents can educate themselves by taking courses offered by the American Red Cross (see the Resource section below for an 800 number) or other local community agencies.
  • Parents should be aware of the relationship between alcohol/drug use and HIV/AIDS. Alcohol and drug use are considered risk factors for the transmission of HIV because: (a) it is a known fact that alcohol and drugs decrease inhibition, thus increasing the likelihood that individuals will engage in high risk behavior such as unprotected sex; and (b) intravenous drug use is known to be a high risk behavior that may result in HIV transmission. There are also many other negative consequences of alcohol/drug use not associated with HIV/AIDS. Therefore, it is important that parents educate their children about risks associated with alcohol/drug use and attempt to promote abstinence from such substances.
  • Do not be fearful if your child is in a classroom with a child who is HIV infected or who has AIDS. Remember that there are no documented cases of AIDS transmission due to casual contact, biting, fighting or contact sports.
  • Universal precautions should be maintained when coming into contact with blood or other bodily fluids that may contain blood. Universal precautions refer to the use of gloves and disinfectants when in contact with blood or blood-contaminated products.
  • Remember that HIV cannot be transmitted through personal contact such as hugging and kissing. It is critical that loving and affectionate contact be maintained with a child with HIV/AIDS.

Resources

Centers for Disease Control National AIDS Hotline:
800-342-AIDS (English)
800-344-SIDA (Spanish)
800-243-7889 (TTY/TDD)

Centers for Disease Control AIDS Clearinghouse: 800-458-5231;
http://cdcnac.aspensys.com:86/aidsinfo.html#Youth

American National Red Cross: 800-26-BLOOD

American Civil Liberties Union/AIDS and Civil Liberties Project: 800-592-1513

Drug Abuse Treatment Information Referral Line: 800-662-HELP

AIDS Action Council, 2033 M Street NW, Suite 802, Washington, DC 20036; (202) 293-2886

American Institute for Teen AIDS Prevention, P.O. Box 136116, Ft. Worth, TX 76136; (817) 237-0230

American Red Cross, HIV/AIDS Education Office, 1709 New York Avenue NW, Suite 208,
Washington, DC 20006; (202) 434-4077

National Coalition for Advocates for Students, 100 Boylston Street, Suite 737, Boston, MA 02116; (617) 357-8507

National Gay and Lesbian Task Force, 1734 14th Street NW, Washington, DC 20009; (202) 332-6483

National Gay Rights Advocates, 540 Castro Street, San Francisco, CA 94114; (415) 863-3624

Planned Parenthood Federation of America, 810 Seventh Avenue, 14th Floor, New York, NY 10019; (212) 541-7800

Sex Information and Education Council of the United States (SIECUS), 130 West 42nd Street, 25th Floor, New York, NY 10036; (212) 819-9770

Journal of the American Medical Association HIV website:
http://www.ama-assn.org/special/HIV/hivhome.htm

Books for Children and Teens

Christie-Dever, B. & M. Ramsey (1996). AIDS: Answers to questions kids ask. Learning Works. (Age 9-12)

Christie-Dever, B. & M. Ramsey (1996). AIDS: What teens need to know. Learning Works.

Hyde, M.O. (1994). Know about AIDS (revised). Walker & Co.

Hyde, M.O. (1995). AIDS: What does it mean? (5th edition). Walker & Co.

Jussim, D. (1997). AIDS and HIV: Risky business (teen issues). Enslow Publishers.

Silverstein & Silverstein (1989). Learning about AIDS. Enslow Publishing.

1998 National Association of School Psychologists, 4340 East West Highway, Suite 402, Bethesda MD 20814 phone 301-657-0270.

 


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